What is Celiac Disease?
The information provided is directly from the Center for Celiac Research. We are not medical professionals so we have directed you to the world's leading research facility in Celiac Disease and Gluten Sensitivity.
Celiac disease is a genetic disorder affecting children and adults. People with celiac disease are unable to eat foods that contain gluten, which is found in wheat and other grains. In people with celiac disease, gluten sets off an autoimmune reaction that causes the destruction of the villi in the small intestine. People with celiac disease produce antibodies that attack the intestine, causing damage and illness. Finding the cause of this disease is a priority of the Center for Celiac Research.
Nearly 1 out of every 133 Americans suffer from celiac disease, according to a study provided by Dr. Alessio Fasano, Center for Celiac Research. The research indicates that celiac disease is twice as common as Crohn’s disease, ulceric colitis and cystic fibrosis combined.
A blood test is now available to screen for the presence of specific antibodies. A biopsy of the intestine (before beginning a gluten free diet) is needed to make a final diagnosis.
Untreated celiac disease can be life threatening. Celiacs are more likely to be afflicted with problems relating to malabsorption, including osteoporosis, tooth enamel defects, central and peripheral nervous system disease, pancreatic disease, internal hemorrhaging, organ disorders (gall bladder, liver, and spleen), and gynecological disorders. Untreated celiac disease has also been linked an increased risk of certain types of cancer, especially intestinal lymphoma.
There are no drugs to treat celiac disease and there is no cure. But celiacs can lead normal, healthy lives by following a gluten free diet. This means avoiding all products derived from wheat, rye, and barley.
You will not outgrow the disease since celiac disease is now considered to be an autoimmune disorder like diabetes and rheumatoid arthritis.
Celiac Disease is not a food allergy; rather it is an autoimmune disease. Food allergies, including wheat allergy, are conditions that people can grow out of. This is not the case with celiac disease.
What is Celiac Disease?
What are the symptoms of Celiac Disease?
How common is Celiac Disease?
How is celiac diagnosed?
What are the long-term effects of Celiac Disease?
What is the treatment for Celiac Disease?
What are the recommended blood tests to diagnose CD?
How accurate are the celiac blood tests?
Are the villi permanently damaged in a patient with Celiac Disease?
What is the meaning of HLA DQ2/DQ8?
Is it necessary to have an intestinal biopsy to confirm the diagnosis of Celiac Disease?
Is it necessary to have an intestinal biopsy to confirm the diagnosis of Dermatitis Herpetiformis (DH)?
If a diabetic goes on a gluten-free diet, will their diabetes improve?
Can a person with Celiac Disease on gluten-free diet give blood?
Can a person with Celiac Disease drink wine?
Can I outgrow Celiac Disease?
Do I need to repeat the biopsy once on a gluten-free diet?
Is Celiac Disease a food allergy?
National Support Groups for information:
Center for Celiac Research
National Foundation for Celiac Awareness NFCA
National Institute of Diabetes and Digestive and Kidney Diseases
Gluten Intolerance Group (GIG) Search for your local group
LSupport Groups/Resources:
Celiac Disease Support Groups in Indiana 2012
Please contact the support group leader for the most up-to-date
information about meeting times and locations
Bloomington:
Celiacs R Us
Meets at Bloomington Hospital Medical Arts Building
Denise Brown
dbrown@premierhealthcare@org
(812) 824-9674
(812) 325-5360(cell)
Sally Knight
Lisa Means
Brazil:
No meetings at this time
Contact person:
Elaine Stephens
(812) 448-3757
Dekalb:
Meets at Dekalb Memorial Hospital
Medical Arts Center East 303A
Anna Hartman
(260) 925-6058
Elkhart County:
Families Living with Celiac Disease Support Group
Meets at Goshen General Hospital, Goshen
Tanya Slabach-Trick
(574) 825-3366
(574) 215-0788
tanyatrick@hotmail.com
Facebook page: Families Living With Celiac Disease Support Group
Evansville:
Gluten Free Evansville
Google group: http://gfevv.com
Kate House
(812) 624-7095
Fort Wayne:
Gladdmd Integrative Clinic
4930 Illinois Rd Suite C, Fort Wayne
Check for GF programs at www.gladdmd.com
Meghann Whetstone, RD
meghann@gladdmd.com
(260) 449-9698
Fort Wayne:
Fort Wayne Celiac Support Group
Meets at Mocha Lounge
6312 Covington Rd.
Debby Minick
(260) 433-0877
Rachael Hamilton
Glutenfreefortwayne.blogspot.com
Facebook page: gluten free Fort Wayne
Hobart – Northwest Indiana:
Linda Nosich
(219) 942-3399
(219) 588-9829 (cell)
Greater Indianapolis Area:
Gluten Intolerance Group of Indianapolis
Meets at Clarian North Hospital in Carmel &
St. Vincent Hospital in Indianapolis
Website: http://glutenfreeindy.com & http://www.gluten.net
https://www. Facebook.com/GlutenFreeIndy
For GIG Newsletter signup at:
http://tinyuri.com/GIG-indy
Email Support Group signup at:
http://groups.google.com/group/Gluten Free-Indy
Suzanne Rampton, Branch Manager
(317) 537-1311
gigindianapolis@hotmail.com
Indianapolis south side, Greenwood:
WheatBusters
Meets at Community South Hospital
Jaunny Luta
(317) 787-2996
jaunnyluta@sbcglobal.net
wheatbusters@gmail.com
Indianapolis west side, Avon:
CSA Celiac Support Group of Indianapolis #60
Joyce Etheridge
(317) 272-4609
joyce.etheridge@indy.rr.com
Muncie:
Meets at Winding Way Farms health food store
Barb Fraizer
(765) 282-7017
South Bend-Mishawaka-Elkhart:
CSA Michiana Chapter #110
Meets at Elkhart Clinic
Yahoo group: CSAMichiana
MaryJane Crabille
(574) 534-5984
Marcie Hayes
(574) 262-1428
Marcie Gamble
(574) 273-9320
dennice@comcast.net
South Bend:
Living Gluten Free Support Group
Meets at Memorial Hospital - Innovation Cafe
Jeannie Derrow, RN
(574) 220-5040
June Brandner, RD
(574) 647-3328
Terre Haute:
Sprue Crew
Meets at Terre Haute Regional Hospital
Jennifer Wickware
(812) 237-1161
jennifer.bowling@hcahealthcare.com
** This list is being shared as a courtesy and we will do our best to ensure it is updated but information can change and please know we will do our best to update the list.
